Holding and professional care: On self-determination for persons with profound and intellectual and multiple disabilities
Peer reviewed, Journal article
Published version
Permanent lenke
https://hdl.handle.net/11250/3048771Utgivelsesdato
2023Metadata
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Originalversjon
Research and Practice for Persons with Severe Disabilities. 2023, 1-16. 10.1177/15407969231153579Sammendrag
Persons with profound intellectual and multiple disabilities (PMID) are in danger of not being granted the human right to experience self-determination. Attitudes questioning the relevance of the rights of persons with significant support needs and a lack of guidance on how to practically go about ensuring selfdetermination might explain this. Providing knowledge about this matter, this article contributes through an ethnography highlighting the relationship between persons with PIMD and professionals. The concept of holding another’s identity was found to be a possible, fruitful approach toward self-determination in this context. Descriptions of holding dialogues with an ethics of care suggest specific conditions for moving practices toward self-determination: recognize the role of the professional, emphasize embodied empathy, and enable involvement. The ethnography suggests a broadened understanding of self-determination, pinpointing the importance of sensitivity toward the other’s particularity.