dc.contributor.author | Gjellestad, Åshild | |
dc.contributor.author | Oksholm, Trine | |
dc.contributor.author | Alvsvåg, Herdis | |
dc.contributor.author | Bruvik, Frøydis Kristine | |
dc.date.accessioned | 2023-01-20T14:06:41Z | |
dc.date.available | 2023-01-20T14:06:41Z | |
dc.date.created | 2022-09-13T09:46:29Z | |
dc.date.issued | 2022 | |
dc.identifier.citation | BMC Health Services Research. 2022, 22 , Article number: 749, 1-13 | en_US |
dc.identifier.issn | 1472-6963 | |
dc.identifier.uri | https://hdl.handle.net/11250/3045013 | |
dc.description | This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativeco mmons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. | en_US |
dc.description.abstract | Background: Adequate care support from home health care nurses is needed to meet the needs of an increasing number of home-dwelling persons with dementia and those who resist care. The decisions nurses make in home health care when encountering resistance from persons with dementia have an extensive impact on the quality of care and access to care. There is little research on what infuences nurse’s encounters with resistance to care from home-dwelling persons with dementia.
Research aim: To get insight into how nurses experience resistance to care from home-dwelling persons with dementia.
Methods: A qualitative research design using a thematic analysis was conducted following the six steps by Braun and Clarke. Data was gathered from three focus group and three individual interviews, and a total of 18 nurses from home health care participated. The interviews took place over a period of 5 months, from December 2020 to April 2021.
Ethical considerations: Approved by the Norwegian Centre for Research, reference number 515138 and by the research advisers and home care managers in each section of the municipality.
Results: Two main themes were identifed: 1) Challenged by complex and inadequate care structures and 2) Adapting care according to circumstances. There were three subthemes within the frst main theme: lack of systematic collaboration and understanding, insufcient fexibility to care, and the challenge of privacy. In the second main theme, there were three subthemes: avoid forced treatment and care to protect autonomy, gray-areas of coercive care and reduced care. The two main themes seemed to be interdependent, as challenges and changes in organizational structures infuenced how nurses could conduct their care practices.
Conclusion: Our fndings indicate that nurses’ responsibility to decide how to conduct care is downplayed when facing resistance. Further, judgement is infuenced by contextual factors and characterized by a strong commitment to avoid forced treatment and care.A continuous challenge is to safeguard shared decision-making at the same time as it is balanced against risks of severe health damage in home-dwelling persons with dementia. A fundamental question to ask is whether autonomy does conquer all, even when severe health damage is at stake. | en_US |
dc.language.iso | eng | en_US |
dc.publisher | BioMed Central (BMC) | en_US |
dc.rights | Navngivelse 4.0 Internasjonal | * |
dc.rights | Navngivelse 4.0 Internasjonal | * |
dc.rights.uri | http://creativecommons.org/licenses/by/4.0/deed.no | * |
dc.subject | interview | en_US |
dc.subject | qualitative | en_US |
dc.subject | decision-making | en_US |
dc.subject | home health care | en_US |
dc.subject | home care | en_US |
dc.subject | person-oriented care | en_US |
dc.subject | involuntary care | en_US |
dc.subject | forced treatment and care | en_US |
dc.subject | resistance to care | en_US |
dc.title | Autonomy conquers all: a thematic analysis of nurses’ professional judgement encountering resistance to care from home-dwelling persons with dementia | en_US |
dc.type | Peer reviewed | en_US |
dc.type | Journal article | en_US |
dc.description.version | publishedVersion | en_US |
dc.rights.holder | © The Author(s) 2022. | en_US |
dc.source.pagenumber | 1-13 | en_US |
dc.source.volume | 22 | en_US |
dc.source.journal | BMC Health Services Research | en_US |
dc.identifier.doi | 10.1186/s12913-022-08123-x | |
dc.identifier.cristin | 2051063 | |
dc.source.articlenumber | 749 | en_US |
cristin.ispublished | true | |
cristin.fulltext | original | |
cristin.qualitycode | 2 | |