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dc.contributor.authorJones, Bethan
dc.contributor.authorBennett, Sarah
dc.contributor.authorLarsson, Ingrid
dc.contributor.authorZangi, Heidi Andersen
dc.contributor.authorBoström, Carina
dc.contributor.authorVan der Elst, Kristien
dc.contributor.authorFayet, Françoise
dc.contributor.authorFusama, Mie
dc.contributor.authorHerrero Manso, María Del Carmen
dc.contributor.authorHoeper, Juliana Rachel
dc.contributor.authorKukkurainen, Marja Leena
dc.contributor.authorKwok, Suet Kei
dc.contributor.authorFrãzao-Mateus, Elsa
dc.contributor.authorMinnock, Patricia
dc.contributor.authorNava, Tiziana
dc.contributor.authorPavic Nikolic, Milena
dc.contributor.authorPrimdahl, Jette
dc.contributor.authorRawat, Roopa
dc.contributor.authorSchoenfelder, Mareen
dc.contributor.authorSierakowska, Matylda
dc.contributor.authorVoshaar, Marieke
dc.contributor.authorWammervold, Edgar
dc.contributor.authorvan Tubergen, Astrid
dc.contributor.authorNdosi, Mwidimi
dc.date.accessioned2022-05-31T11:51:55Z
dc.date.available2022-05-31T11:51:55Z
dc.date.created2022-05-06T12:49:31Z
dc.date.issued2022
dc.identifier.citationRMD Open. 2022, 8 (1), 1-10en_US
dc.identifier.issn2056-5933
dc.identifier.urihttps://hdl.handle.net/11250/2997050
dc.descriptionRe-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. For numbered affiliations see end of article.en_US
dc.description.abstractObjectives: To explore patients’ agreement and reasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). Methods: This mixed-method survey collected data using snowball sampling. The survey had been translated into 20 languages by local healthcare professionals, researchers and patient research partners. It explored the degree to which patients with IA agreed with each recommendation for PE (0=do not agree at all and 10=agree completely) and their rationale for their agreement level in free text questions. Descriptive statistics summarised participants’ demographics and agreement levels. Qualitative content analysis was used to analyse the free text data. Sixteen subcategories were developed, describing the reasons for agreement or disagreement with the recommendations, which constituted the categories. Results: The sample comprised 2779 participants (79% female), with a mean (SD) age 55.1 (13.1) years and disease duration 17.1 (13.3) years. Participants strongly agreed with most recommendations (median 10 (IQR: 9–10) for most recommendations). Reasons for agreement with the recommendations included the benefit of using PE to facilitate collaborative care and shared decision making, the value of flexible and tailored PE, and the value of gaining support from other patients. Reasons for disagreement included lack of resources for PE, not wanting information to be tailored by healthcare professionals and a reluctance to use telephone-based PE. Conclusion: The EULAR recommendations for PE have been disseminated among patients with IA. Overall, agreement levels were very high, suggesting that they reflect patients’ preferences for engaging in collaborative clinical care and using PE to facilitate and supplement their own understanding of IA. Reasons for not completely agreeing with the recommendations can inform implementation strategies and education of healthcare professionals.en_US
dc.language.isoengen_US
dc.publisherBMJ Publishing Groupen_US
dc.rightsNavngivelse-Ikkekommersiell 4.0 Internasjonal*
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/deed.no*
dc.subjectpatient educationen_US
dc.subjectinflammatory arthritisen_US
dc.subjectEULAR recommendationsen_US
dc.subjectpatientsen_US
dc.titleDisseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectivesen_US
dc.typePeer revieweden_US
dc.typeJournal articleen_US
dc.description.versionpublishedVersionen_US
dc.rights.holder© Author(s) (or their employer(s)) 2022.en_US
dc.source.pagenumber1-10en_US
dc.source.volume8en_US
dc.source.journalRMD Openen_US
dc.source.issue1en_US
dc.identifier.doi10.1136/rmdopen-2022-002256
dc.identifier.cristin2022092
cristin.ispublishedtrue
cristin.fulltextoriginal
cristin.qualitycode1


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Navngivelse-Ikkekommersiell 4.0 Internasjonal
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