• norsk
    • English
  • English 
    • norsk
    • English
  • Login
View Item 
  •   Home
  • VID vitenskapelige høgskole
  • 1 Artikler / Articles
  • Publikasjoner fra CRIStin
  • View Item
  •   Home
  • VID vitenskapelige høgskole
  • 1 Artikler / Articles
  • Publikasjoner fra CRIStin
  • View Item
JavaScript is disabled for your browser. Some features of this site may not work without it.

Supporting carers: health care professionals in need of system improvements and education - a qualitative study

Røen, Ingebrigt; Stifoss-Hanssen, Hans; Grande, Gunn; Kaasa, Stein; Sand, Kari; Knudsen, Anne Kari
Journal article, Peer reviewed
Accepted version
Thumbnail
View/Open
Roen-2019-Supporting+carers_+health+care+profe.pdf (773.1Kb)
URI
http://hdl.handle.net/11250/2611889
Date
2019
Metadata
Show full item record
Collections
  • Artikler / Articles [582]
  • Publikasjoner fra CRIStin [372]
Original version
BMC Palliative Care. 2019, 18 (1), 58-68.   10.1186/s12904-019-0444-3
Abstract
Abstract Background: Health care professionals should prevent and relieve suffering in carers of patients with advanced cancer. Despite known positive effects of systematic carer support, carers still do not receive sufficient support. Carers have reported to be less satisfied with coordination of care and involvement of the family in treatment and care decisions than patients. In a rural district of Mid-Norway, cancer palliative care services across specialist and community care were developed. Participants’ experiences and opinions were investigated as part of this development process. Methods: The aim of this qualitative study was to explore and describe health care professionals’ experiences with carer support from their own perspective. Data were collected in focus groups. Purposeful sampling guided the inclusion. Six groups were formed with 21 professionals. The discussions were audio-recorded, transcribed, and analyzed using systematic text condensation. Results: In the analyzis of the focus group discussions, ten categories emerged from the exploration of health care professionals’ carer support, assessment of needs, and factors hampering carer support: 1) dependent on profession, role, and context, 2) personal relationship, 3) personal skills and competence, 4) adjusted to the stage of the disease, 5) informal assessment of carers’ needs, 6) lack of education 7) lack of systems for carer consultations, 8) lack of systems for documentation, 9) lack of systems for involving GPs, and 10) lack of systematic spiritual care. Conclusions: Health care professionals built a personal relationship with the carers as early as possible, to facilitate carer support throughout the disease trajectory. Systematic carer support was hampered by lack of education and system insufficiencies. Organizational changes were needed, including 1) education in carer support, communication, and spiritual care, 2) use of standardized care pathways, including systematic carer needs assessment, 3) systematic involvement of general practitioners, and 4) a system for documentation of clinical work with carers. Keywords: Health care professionals, Oncology, Palliative care, Family carers, Carer support, Needs assessment, Integration
 
Supporting carers: health care professionals in need of system improvements and education - a qualitative study
 
Publisher
BioMed Central
Journal
BMC Palliative Care
Copyright
Open Access

Contact Us | Send Feedback

Privacy policy
DSpace software copyright © 2002-2019  DuraSpace

Service from  Unit
 

 

Browse

ArchiveCommunities & CollectionsBy Issue DateAuthorsTitlesSubjectsDocument TypesJournalsThis CollectionBy Issue DateAuthorsTitlesSubjectsDocument TypesJournals

My Account

Login

Statistics

View Usage Statistics

Contact Us | Send Feedback

Privacy policy
DSpace software copyright © 2002-2019  DuraSpace

Service from  Unit