Browsing Publikasjoner fra CRIStin by Author "Castor, Charlotte"
Now showing items 1-4 of 4
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It's about living a normal life: parents' quality of life when their child has a life-threatening or life-limiting condition - a qualitative study
Kittelsen, Trine Brun; Bruun Lorentsen, Vibeke; Castor, Charlotte; Lee, Anja; Kvarme, Lisbeth Gravdal; Winger, Anette (Peer reviewed; Journal article, 2024)Background: Pediatric palliative care (PPC) seeks to enhance the quality of life (QoL) for both children and their families. While most studies within PPC have focused on the ill child’s QoL, less is known about parents’ ... -
Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review
Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Riiser, Kirsti; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2023)Background: Measuring outcomes facilitates evaluation of palliative services for children, adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) conditions. Implementation of patient-reported, ... -
Patient-reported outcome measures in pediatric palliative care—a protocol for a scoping review
Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Riiser, Kirsti; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2021)Background: In pediatric palliative care (PPC), there is a need to involve the child’s voice in situations regarding their symptoms and care needs. Patient-reported outcome measures (PROMs) can be tools to systematically ... -
Stories of paediatric palliative care: a qualitative study exploring health care professionals’ understanding of the concept
Riiser, Kirsti; Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Albertini Früh, Elena (Peer reviewed; Journal article, 2022)Background: By sharing patient stories, health care professionals (HCPs) may communicate their attitudes, values and beliefs about caring and treatment. Previous qualitative research has shown that HCPs usually associate ...