Browsing Publikasjoner fra CRIStin by Author "Lee, Anja"
Now showing items 1-4 of 4
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Making room for life and death at the same time – a qualitative study of health and social care professionals’ understanding and use of the concept of paediatric palliative care
Winger, Anette; Albertini Früh, Elena; Holmen, Heidi; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Riiser, Kirsti; Steindal, Simen Alexander (Peer reviewed; Journal article, 2022)Background: The concept of pediatric palliative care (PPC) is applied diferently within the healthcare system and among healthcare professionals (HCPs). To our knowledge, no studies have investigated how multidisciplinary ... -
Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review
Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Riiser, Kirsti; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2023)Background: Measuring outcomes facilitates evaluation of palliative services for children, adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) conditions. Implementation of patient-reported, ... -
Patient-reported outcome measures in pediatric palliative care—a protocol for a scoping review
Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Riiser, Kirsti; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2021)Background: In pediatric palliative care (PPC), there is a need to involve the child’s voice in situations regarding their symptoms and care needs. Patient-reported outcome measures (PROMs) can be tools to systematically ... -
Stories of paediatric palliative care: a qualitative study exploring health care professionals’ understanding of the concept
Riiser, Kirsti; Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Albertini Früh, Elena (Peer reviewed; Journal article, 2022)Background: By sharing patient stories, health care professionals (HCPs) may communicate their attitudes, values and beliefs about caring and treatment. Previous qualitative research has shown that HCPs usually associate ...