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    • Non-invasive ventilation in the palliative care of patients with chronic obstructive pulmonary disease: a scoping review protocol 

      Steindal, Simen Alexander; Hofsø, Kristin; Aagaard, Hanne; Mariussen, Kari; Andresen, Brith; Christensen, Vivi Lycke; Heggdal, Kristin; Karlsen, Marte-Marie Wallander; Kvande, Monica Evelyn; Kynø, Nina M; Langerud, Anne Kathrine; Ohnstad, Mari Oma; Sørensen, Kari; Larsen, Marie Hamilton (Peer reviewed; Journal article, 2021)
      Introduction: Patients with advanced chronic obstructive pulmonary disease (COPD) experience a great symptom burden. Breathlessness is a very frequently reported symptom that negatively affects all aspects of daily life ...

    • Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review 

      Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Riiser, Kirsti; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2023)
      Background: Measuring outcomes facilitates evaluation of palliative services for children, adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) conditions. Implementation of patient-reported, ...

    • Patient-reported outcome measures in pediatric palliative care—a protocol for a scoping review 

      Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Riiser, Kirsti; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2021)
      Background: In pediatric palliative care (PPC), there is a need to involve the child’s voice in situations regarding their symptoms and care needs. Patient-reported outcome measures (PROMs) can be tools to systematically ...